Is muscular Dystrophy Terminal

Is muscular Dystrophy Terminal

http://www.chacha.com/question/is-muscular-dystrophy-terminal

There’s no cure for MD, but medications and therapy can slow the course of the disease. Eventually we all die of something.

Related Questions Answered on Y!Answers

Should I tell my Mom’s doctor?

Q: I have a disease that was diagnosed by a neurologist. Others in my family also have this rare disease. It is genetic. The only way a person can get this is if their parent has it. There is no such thing with this disease as a carrier who does not have the disease. Now the problem: My mom has this, we are 100% sure since she gave it to me and my sisters and her Dad has it. It is a form of muscular dystrophy. It is terminal. She is in denial about it. Swears there is no way she has it and says if she did, her doctor would have told her. This is not common disease to look for and he would not even think of it unless he knew the family history. Her doctor is an old country doctor and not real advanced. My sisters and I have told her all this but she denies the possibility of her having it and she has ALL the symptoms including a heart attack last year. If her doctor told her she needs to get tested she would and then she could get treatment to alleviate the symptoms and prolong her life. I know this doctor but not well. Would it be wrong for me to write to the doctor letting him know our family history and concerns? My mom said she hasnt told him the history, she doesnt know enough about it although we even sent her a booklet with the symptoms, etc.

A: Personally, I would go ahead and inform her doctor. Explain the situation about your medical history, that it is genetic, and that she is in denial and refusing to get tested or treatment. Include information about how her doctor can get in touch with your doctor to verify what you have informed him about yourself (you will need to sign a release of specific information for your mom’s doc to do that) so he knows you are not giving him bad or false information.Medical information privacy laws are tricky, but the short of it is that it is ok for YOU to give him information, but he can not give you any information about her or her health without permission. This would be like you telling the doctor she has a history breast cancer or drug abuse. It is a “need to know” situation in all honesty, especially in the light of her having a heart attack, etc.Go ahead and write the letter, to keep her from getting angry at you specifically, you can always ask your siblings to sign the letter and include their medical information as well. Your mom may be mad, but it may be the only way to get her help!Good luck!

Naming after brothers…?

Q: My husband and I are trying to get pregnant, and my step-mom and dad want us to name a boy after 2 of my little brothers. The thing is, my brothers have Duchene Muscular Dystrophy, and they are terminal. I love my brothers, and having them sick is the hardest thing I will ever face, but I just can’t bring myself to agree to naming my baby after them. I don’t want my child to remind everyone of something so sad, or for my brothers to feel like they are being replaced in ANY way. Am I being over-sensitive? How do I explain to my parents I just don’t want to do this. It will be hard enough being without them when the time come, I don’t want my own child to be one more reminder of what I have lost.

A: I totally understand. There are your children and your mother needs to take no for an answer. Explain how you feel. And pleaseeeeeeeeeeeeeee don’t let her change your mindMy daughter is expecting a baby girl in January. If it were a boy she wanted to name it after her brother, my son, who died 5 years ago at the age of 21. I was relieved that the baby is a girl. I am not sure I could call a little grandson Aaron, each time the word would come out of my mouth I would think of my son. I think it is good to let at least one more generation go by before useing such names. Also, I strongly believe that if you name your boys that……they will feel that they are responsible to live up to the name and do what your brothers couldn’t do in life. That is way too much to ask of a child. Think of how a child would feel being refered to as ——- who is named after ——-. Gosh what a buredon to a kid. My daughter has the middle name of my cousin who died in a car accident. There were 30 years sinse she died and another generation.My mother and I have the same middle name. She drove me nuts when I had my daughter wanting me to pass on that name for the third generation. I don’t like my middle name, I sure wouldn’t want to give it to my daughter just becsue my mother wanted it.Stand firm.We all deal with loss differently. My daughter has pictures of her brother in every room of her house. Where as me…….It took me four years until I could even bring out one picture of him. And another year to take out his wedding picture.Say to your family……thanks for the ideas. We will consider them, and right now we are going for these names……..Just say sorry mom I am the mom now and this is my family. I wish I could make you happy, but these are my boys and I will miss my brothers so much that I personally can’t deal with itHelp your mom find another way to honor the boys.Also, you can have her read this.

how to accept the loss of my papa?

Q: had the worse year ever so far,and finding it hard to accept the recent sudden loss of my papa.in january i lost my nephew to muscular dystrophy age 16 he suffered alot near the end so found it easier to accept,my husbands gran past in march his uncle was diagnosed with terminal cancer in may giving him 8 weeks to live ,but my papa complained of stomach pains on thursday the 12th of june which was put down acid in his stomach on the friday he felt worse so was admitted to hospital ,went to hospital to visit he did have pain relief and they were doing test but hospital didn,t seem to worried and were planning some scans for the saturday but saturday morning family got called at 8am in the morning saying he only had hours to live he passed away in the afternoon ,he was my only grandparent i ever had and although im am 33 myself i am finding it hard to accept he,s gone it is breaking my heart as we were so close and he was also a big part of my child hood i feel so lost at the moment

A: I’m so very sorry for your loss!!!I was born late in life to my parents, and I never got to have a close relationship with any of my grandparents. You are fortunate, indeed!ut at this moment I know that you feel *anything but* that! So, I’m posting the link to this wonderful online brochure, written “just for you”!:”When Someone You Love Dies…” http://watchtower.org/e/we/index.htmPick out the parts that apply…If you want, you can obtain a printed, or even an audio copy of it. This one might also bring back some memories…’Why Should I Get to Know My Grandparents?” http://watchtower.org/e/20010422a/article_01.htmI like to do that while mourning. It helps me to say goodbye…